Understanding Advance Care Planning in Australia — and why planning ahead matters for every family

Each year in Australia, Advance Care Planning Week encourages people to think about something many of us avoid discussing — what happens if we become seriously ill or unable to make decisions for ourselves.

It’s not about expecting the worst. It’s about making sure the people who care about you understand what matters most if difficult decisions ever need to be made.

Advance care planning gives families clarity during stressful moments. Without it, loved ones are often left guessing.

And in Australia, that happens far more often than most people realise.

Why Advance Care Planning Matters

Advance care planning discussion and document signingAdvance care planning is the process of thinking about, discussing and documenting your preferences for future health care and personal decisions.

This can include:

  • the types of medical treatment you would or would not want
  • who should make decisions on your behalf if you cannot speak for yourself
  •  the values and priorities that should guide your care

When these decisions are documented in advance care directives or discussed with family, doctors and carers, it reduces confusion and conflict during medical crises.

Unfortunately, many Australians have not taken this step.

Research suggests that only a minority of Australians have formally documented their care preferences or appointed a substitute decision maker. Studies published by Advance Care Planning Australia show that many people support the idea of planning ahead, but far fewer actually complete the documents.

A landmark national study commissioned by Advance Care Planning Australia reveals that only one in three Australians (33%) have taken steps to plan for their future health care (16th June 2025)

This gap often leaves families making urgent decisions without knowing what their loved one would have wanted.

Advance Care Planning Week in Australia

Advance Care Planning Week is held each year to encourage Australians to start these conversations.

Organisations across the country use the week to raise awareness about the importance of documenting care preferences, appointing decision makers and having open discussions with family members.

The goal is simple: help people plan ahead before a health crisis occurs.

More information about the national campaign and resources available to Australians can be found at Advance Care Planning Australia.

Planning Ahead Reduces Stress for Families

When someone becomes seriously ill or loses the ability to communicate, decisions often need to be made quickly.

Without clear guidance, families can struggle with questions such as:

  • Would they want aggressive treatment or comfort care?
  • Who should speak to doctors on their behalf?
  • What matters most to them at the end of life?

Advance care planning helps answer those questions ahead of time.

It allows people to document their wishes, appoint trusted decision makers and ensure their care aligns with their values.

For families, this can make an enormous difference.

Instead of guessing, they can focus on supporting their loved one with confidence that they are honouring their wishes.

Planning Goes Beyond Medical Decisions

Advance care planning is an important step, but it is only one part of preparing for the unexpected.

Medical preferences are just one piece of the puzzle.

Families also often struggle to locate important information when a crisis occurs, including:

  • key documents
  • account information
  • household responsibilities
  • important contacts
  • instructions for ongoing affairs

Without a clear record, even simple tasks can become complicated at a time when families are already under emotional stress.

That’s why many people choose to organise their personal affairs alongside their medical planning — ensuring loved ones can access the practical information they may need in an emergency or health event.

Starting the Conversation

The most important step in advance care planning is simply starting the conversation.

Talk with the people closest to you about your wishes, values and priorities.

Consider documenting those decisions through the appropriate advance care directive for your state or territory.

Planning ahead is not about expecting the worst — it’s about making sure your voice is heard when it matters most.

It’s about giving your family clarity, reducing uncertainty and making sure your voice is heard when it matters most.

Free End-of-Life Planning Checklist

If you’re not sure where to begin, download the free checklist showing the key information families often need when managing someone’s affairs.

Download the Checklist

Understanding Advance Care Planning in Australia — and why planning ahead matters for every family

Each year in Australia, Advance Care Planning Week encourages people to think about something many of us avoid discussing — what happens if we become seriously ill or unable to make decisions for ourselves.

It’s not about expecting the worst. It’s about making sure the people who care about you understand what matters most if difficult decisions ever need to be made.

Advance care planning gives families clarity during stressful moments. Without it, loved ones are often left guessing.

And in Australia, that happens far more often than most people realise.

Advance care planning discussion and document signing

Why Advance Care Planning Matters

Advance care planning is the process of thinking about, discussing and documenting your preferences for future health care and personal decisions.

This can include:

  • the types of medical treatment you would or would not want
  • who should make decisions on your behalf if you cannot speak for yourself
  •  the values and priorities that should guide your care

When these decisions are documented in advance care directives or discussed with family, doctors and carers, it reduces confusion and conflict during medical crises.

Unfortunately, many Australians have not taken this step.

Research suggests that only a minority of Australians have formally documented their care preferences or appointed a substitute decision maker. Studies published by Advance Care Planning Australia show that many people support the idea of planning ahead, but far fewer actually complete the documents.

A landmark national study commissioned by Advance Care Planning Australia reveals that only one in three Australians (33%) have taken steps to plan for their future health care (16th June 2025)

This gap often leaves families making urgent decisions without knowing what their loved one would have wanted.

Advance Care Planning Week in Australia

Advance Care Planning Week is held each year to encourage Australians to start these conversations.

Organisations across the country use the week to raise awareness about the importance of documenting care preferences, appointing decision makers and having open discussions with family members.

The goal is simple: help people plan ahead before a health crisis occurs.

More information about the national campaign and resources available to Australians can be found at Advance Care Planning Australia.

Planning Ahead Reduces Stress for Families

When someone becomes seriously ill or loses the ability to communicate, decisions often need to be made quickly.

Without clear guidance, families can struggle with questions such as:

  • Would they want aggressive treatment or comfort care?
  • Who should speak to doctors on their behalf?
  • What matters most to them at the end of life?

Advance care planning helps answer those questions ahead of time.

It allows people to document their wishes, appoint trusted decision makers and ensure their care aligns with their values.

For families, this can make an enormous difference.

Instead of guessing, they can focus on supporting their loved one with confidence that they are honouring their wishes.

Planning Goes Beyond Medical Decisions

Advance care planning is an important step, but it is only one part of preparing for the unexpected.

Medical preferences are just one piece of the puzzle.

Families also often struggle to locate important information when a crisis occurs, including:

  • key documents
  • account information
  • household responsibilities
  • important contacts
  • instructions for ongoing affairs

Without a clear record, even simple tasks can become complicated at a time when families are already under emotional stress.

That’s why many people choose to organise their personal affairs alongside their medical planning — ensuring loved ones can access the practical information they may need in an emergency or health event.

Starting the Conversation

The most important step in advance care planning is simply starting the conversation.

Talk with the people closest to you about your wishes, values and priorities.

Consider documenting those decisions through the appropriate advance care directive for your state or territory.

Planning ahead is not about expecting the worst — it’s about making sure your voice is heard when it matters most.

It’s about giving your family clarity, reducing uncertainty and making sure your voice is heard when it matters most.

Free End-of-Life Planning Checklist

If you’re not sure where to begin, download the free checklist showing the key information families often need when managing someone’s affairs.

Download the Checklist

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